Assessment of Parental Satisfaction with Management of a Child’s Nonsyndromic Cleft Lip and/or Cleft Palate

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Title: Assessment of Parental Satisfaction with Management of a Child’s Nonsyndromic Cleft Lip and/or Cleft Palate
Author: Hutchinson, Deanna K.
Description: The purpose of this study was to assess parental satisfaction of children with nonsyndromic cleft lip and/or cleft palate concerning feeding and surgery education. This retrospective cross-sectional study used an original questionnaire. Four multidisciplinary teams in Ohio and Kentucky distributed the questionnaire to sixty-one parents of children between the ages of 3 months and 4 years with nonsyndromic clefts. Fifty percent of parents were satisfied with their experiences at the birth hospital. Parents who received feeding instructions within 12 hours after their child’s birth felt more adequately prepared to feed their child than those who did not (p=0.0042). Over 90% of parents were satisfied with the care provided by their multidisciplinary team. Since half of the parents in this study were dissatisfied with their experiences at the birth hospital, birth hospitals need to ensure parents of children with orofacial clefts are educated about feeding techniques within 12 hours after birth.
Permanent Link: http://rave.ohiolink.edu/etdc/view?acc_num=ucin1123868325
http://hdl.handle.net/2374.OX/10898
Date: 2005

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